Week 2: July 6-12

Hi Megan! I’m loving the strategies you tried-- so creative! I’m so curious about the tie-dye activity! Did you just do that on the light box?

I also think the idea of the reflective ribbon on the arm is such a cool and simple way to encourage object exploration within the space your student already explores/interacts with. It reminds me of active learning strategies. It’s also a great reminder that we don’t always have to make huge purchases to create meaningful opportunities/ instruction.

Thanks for sharing!!

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Hi Katherine! It’s so impressive that your professor knew about CVI and gave you the opportunity for more training-- I wonder how common that is! Also-- I’m in WY and hoping to visit USDB some day (it’s the closest School for the Blind to us!).

I’m so curious what TVI programs are teaching now, as far as CVI goes. I hope it’s in-depth —because, wow, my caseload is bursting at the seams with students with CVI.

I went to Florida State and graduated in 2013. I absolutely LOVED my program and I still keep in touch with many of my former classmates–I know I’m lucky to have had such a positive experience. I recall a unit on CVI (maybe a full unit?), but to the best of my memory, that was the extent of it. I do remember it being a bit confusing, with a lot of discussion about individuals with CVI experiencing fluctuating vision. I don’t remember learning about the likelihood of CVI co-occurring with additional disabilities or learning about the characteristics.

After working at TSBVI, I was able to learn a lot more and have taken courses over the years, doing my best to stay up-to-date with best practices in the CVI world. I’m not sure if I’ll ever feel like I’m fully up to date —it’s such a vast topic that we’re constantly learning more about it.

I’ve actually given a lot of thought to TVI prep programs-- so many of my friends went through virtual instruction and have expressed frustration with the fast-paced nature of the programs, with limited opportunity for face-to-face practice or instruction. Many felt like they had retained less and covered less ground than a typical program. I understand it is such a privilege to have access toan in-person TVI program, or to be able to be a full-time student, but it does make me think about teacher education and training.

I wish there could be a semester-long course on CVI. Maybe that is the case somewhere? Fingers crossed that can become a norm in TVI/O&M programs!!

You will LOVE USDB. They have so many cool things going on there!

I think that Perkins has a CVI course, but not sure what is involved. They also have a CVI Certificate. I think becoming a TVI would be incredible on top of SLP, but there is a lot involved with that!
https://www.perkins.org/our-work/cvi/cvi-learning-journey/

PACES-BVI: Cortical/Cerebral Visual Impairment
3. Think of a student with CVI you’ve supported. How did sensory complexity, attention, or the environment impact their ability to access instruction? What helped or hindered their visual attention? What strategies made a difference?

Complexity played an important role in my student’s ability to be successful in the classroom. When I first started working with the student he was at an area that had a lot of complexity. There were papers and posters on the wall in front of him. He had a desk full of equipment, books and materials. In the classroom there were several students that often were loud and moved around frequently. This was causing a lot of trouble focusing on the teacher. I moved the posters on the wall, placed the student so that he was able to face the wall when working independently and the teacher and students when engaged in classroom activities. We organized his desk by bringing in a three-drawer cart to sit next to the table so that materials and equipment could be put away when not in use. These strategies helped him be better able to pay attention and complete tasks. We also used breaks when he needed, especially as the classroom was loud at times. We worked on identifying when this was and he became good at advocating for his needs and letting staff know when he needed breaks. When completing assignments the student often preferred to work on the computer with a larger monitor and magnified text and mouse. When completing assignments with a lot of visual clutter we had the student use a paper to block information that wasn’t needed. I also discussed with staff to ask the student what they saw rather than if they saw an object. This really helped the few times they used black and white pictures that were hard to see. The student was included in all of the decision making and this helped the student to know their opinion was valued and needed and helped staff understand that it was not just me coming into their classrooms and determining what was best for the student but rather what the student needed.

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You make a wonderful point! It is so hard when we have staff that are trying their best to understand the student’s vision and needs. I have had some experiences with staff trying to make general accommodations of black background and yellow text and other strategies they have used for other students with CVI. I appreciate their hard work and dedication but agree if is difficult when I have to explain that the accommodations may have worked in the past for another student but will not work for the current student even though they both have CVI.

I agree I did not know as much when I first started teaching students with visual impairments as I do now. In my TVI training program we did learn about CVI but it was over ten years ago. There is so much more information now and I feel we are constantly learning new information, resources, strategies and ways to adapt materials and environment to help our students. About three years ago we had an entire year professional development devoted to CVI for all of our TVI’s and Certified Orientation and Mobility Instructors throughout our state. I have also taken several classes about CVI. All of this has been so beneficial to me but there is always more I am learning.

Hello :slight_smile: Thank you! I am always looking for creative ways to get around the pricing of items because they are marketed as being for individuals with disabilities. The price hikes are crazy sometimes! For the tie-dye activity I had the lightbox on the floor in a dark environment. I put a scrapbook paper Tupperware-like bin (search ‘clear scrapbook paper bin’ on Google) on top of the light box. I was lucky that they had a sink in the classroom, so I wet the shirt and put it in the box on top of the light box with a little bit of water. For this kid, she was not reaching out to explore or inspect items, so I did not have to worry about her putting her hands into it as we did the project or swiping at it. I sat her in my lap and helped her to use the orange and yellow squirt bottles to dye the shirt and look at the colors then took it home and washed it and brought it back. It was actually a tie-dye kit I found in the dollar section at Target around summertime. Some of my best finds are from there!

I really loved your post about allowing your kiddo to experience that independence to encourage her confidence and toleration for exploration. I feel like a lot of times our kids are manipulated, even against the kid’s protest, especially if they are nonverbal or blind. Focusing on that independently initiated interaction to encourage purposeful communication and exploration is huge, and it was so nice to read about the positive progress you saw as a result!

    1. Compare and contrast the roles of parents and professionals in interpreting a child’s behavior. How can these perspectives complement one another?

Parents have great insight on our students as they know them better and are with them in many different settings that we are not. I have personally been in this situation as a parent of a child with a visual impairment. I found that when at a doctors office they really did not listen to me as they were the professional and I was just a mom. My early intervention professionals were very different in they listened to the things that I observed in my child. One very important thing that was listened to was determining whether he needed PT since he was not walking by 18 months. I knew he could walk, but he did not want to because it moved him further from the floor and then he could not see it. I had observed him putting his behind up in the air with just hands and feet on the floor and he just did not want to lift his hands off the floor to move away. At 22 months he decided to try it and with much clapping and telling him great job he got the courage to walk around slowly. Medical professionals berated me for not getting him into PT due to missing the milestone, but EI professionals cautiously listened and said we would revisit and I took some tips from the PT during assessment. I knew he would do it he just needed time. I think this is where as professionals we have to listen to parents and what they know about their children. Our students do not necessarily hit milestones in the order of others and we need to be mindful of this and not look at the milestone book. We also need to be assessing and observing ourselves to be sure something has not been missed. Parent information is part of our assessment and using it to compare to our observations can lead to other findings or just be what the parent said. I think we have to remember we are working as a team to determine the next best steps for a child with VI.

What a great example of changing things up for a student! I love this as I was a first year teacher last year and did the same thing of combing through all the information about a student. I went in and was overwhelmed with how often I had to change course. I feel like the first few weeks I was just overwhelming my students also. I had to start again after labor day weekend and build a trust with students and I realize going through the information in this course that I had not considered my touch and the sound of my voice. I earned many students trust, but still had a few students that I have not fully earned their trust and will go back this year and see if modifying hand over hand/ hand under hand and my tone. Thank you for such a great success story!

I love this as I just completed my first year teaching and have utilized these strategies also. It feels great to know I am using tried and true ways of working with students with CVI. I have also worked with OT, PT, classroom teachers, SLP in implementing these strategies. While many times I speak with these professionals and they implement some do not. I know this is not what we are talking about here, but what are some encouraging ways to work with professionals to carry these strategies throughout our students day?

CVI Scotland: Dr. Amanda Lueck’s Guest Blog

Reflect on a time when assumptions about development or vision influenced how a student with CVI was understood or supported. What assumptions did you or others bring to the situation? How did those assumptions affect the approach or expectations? What helped shift your perspective?

I have had many experiences where a student’s perceived vision impacted the educational approach and expectations. The blog mentioned how important it is to read the information available about a student, but not let that interfere with what you see in the present moment of the evaluation or observation. I recall doing early steps evaluations for a three-year-old student that did not yet have the learning expectations of school. A lot of the assessments were visual pictures and I always came with a curiosity if that was the best medium or if the student really understood the picture. In completing an FVA, I told the team to be aware that sometimes looking and successful interpretation of images and pictures / things in the environment. The assumption that I brought to the situation was one that highlighted both current skills and future needs. I encouraged the team to look at the whole child with assessments and keep the approach simple. Not all assessments would highlight the student’s ability to see and interpret pictures on the paper. It challenged the team to create a whole child approach and find assessments that would help get the best and most accurate results. My job on the team was the point out that accessibility/presentation of materials is important and will impact the validity of the evaluation.

Compare and contrast the roles of parents and professionals in interpreting a child’s behavior. How can these perspectives complement one another?

In an evaluation with a 3-year-old, there were different interpretations of the student’s current level and skills. Her mother felt like there were concerns about visual functioning, but felt very alone. My job was to encourage her mother to let her know of all the resources available and she was not alone. The parent has a very important perspective that must be respected and heard and it’s important to have a whole team approach. The PT, OT, Speech, APE, and anyone else at the evaluation on the school team all come from different perspectives. We all see a moment in time and complete our assessment, but the parent puts all of the pieces together. It’s important to know daily routines, likes/dislikes, needs and/or concerns of the parents, and any important medical history etc. The only way a really good evaluation is the professional evaluation team listen to each other and not think that one is more important than the other. Everyone needs to be reminded that the whole child needs to be evaluated with a strength based approach and this does not always happen.

PACES-BVI: Cortical/Cerebral Visual Impairment

Think of a student with CVI you’ve supported. How did sensory complexity, attention, or the environment impact their ability to access instruction? What helped or hindered their visual attention? What strategies made a difference?

I worked with a student who had additional disabilities and limited verbal communication to demonstrate understanding of academic work. He was in a wheel chair with para support at school and able to interpret pictures of familiar items. However, with increased sensory input in the environment (noise, visual clutter etc.), he would look around and not visually focus on the content. In order to help this student, supports included use of a light box, materials put on a black background, tasks that were familiar and known to the student before evaluating knowledge, and a use of 3-D material with increased contrast in the classroom. He will be going to kindergarten this upcoming school year and accessibility of worksheets will be a challenge for this student.

To what extent do existing professional preparation programs (across fields) equip practitioners to understand and serve students with CVI?

I do not think that programs prepare teacher to work with students that have brain based visual conditions (CVI) and it’s hard to convince teachers/administrators in the classroom to try a different, less complex approach to education. You do learn about it, but not enough to know how to work with students on a practical level. Most of the learning is completed on the job, but this is the way in most professions.

PaTTON: Examples of Different CVI Terminology

Consider how has the use of different terms to describe CVI (e.g., CVI, cerebral visual impairment, neurological visual impairment) may affect collaboration with other professionals. Has inconsistent language ever caused confusion or misalignment? What helped clarify communication across teams or settings? How do you navigate terminology in your own practice?

I have not had a lot of confusion with the different terms when working with other professionals. I usually use the acronym CVI and then spell it out (cerebral visual impairment). I find that it’s important to explain the who, what, why and how of CVI to professionals and not assume that they understand. In my own practice, I put in in terms that are clear and concise that apply to the classroom. It’s important to teach and model specific steps that can be taken to support students with CVI. When it seems like more a partnership between TVI and classroom teacher / support team, it is a lot easier to find success with appropriate student support.

What are the key similarities and differences among the three sets of terminology (Visual Behaviors, Characteristics, and Manifestations) used to describe CVI, and how might these differences impact a team’s understanding of CVI and its impact on a student?

The CVI Visual behaviors describe specific categories of behavior that are impacted by an increased difficulty in interpreting the environment. They are not specific, but different overall things that might be more difficult. For example, overall impact of clutter/crowing/spacing and accessibility of worksheet/forms may be more difficult. With CVI characteristics, it’s more specific and gives you something to look for (ex. How much do they need light, how they interpret items etc. near and distance, and any favorite color etc.). Manifestations of CVI highlights how each of the CVI behaviors are impacted in a non-controlled environment or complex/non-complex environment. There could be difficulty imitating and copying off of the board, seeing visual details with clarity, or responding/understanding new or novel tasks and/or assignments etc. I think that they all work together and function at different levels. It might be helpful to first understand the overarching CVI visual behaviors then go into more specifics about what to look for and focus on in the classroom. CVI Scotland: Dr. Amanda Lueck’s Guest Blog

Reflect on a time when assumptions about development or vision influenced how a student with CVI was understood or supported. What assumptions did you or others bring to the situation? How did those assumptions affect the approach or expectations? What helped shift your perspective?

I have had many experiences where a student’s perceived vision impacted the educational approach and expectations. The blog mentioned how important it is to read the information available about a student, but not let that interfere with what you see in the present moment of the evaluation or observation. I recall doing early steps evaluations for a three-year-old student that did not yet have the learning expectations of school. A lot of the assessments were visual pictures and I always came with a curiosity if that was the best medium or if the student really understood the picture. In completing an FVA, I told the team to be aware that sometimes looking and successful interpretation of images and pictures / things in the environment. The assumption that I brought to the situation was one that highlighted both current skills and future needs. I encouraged the team to look at the whole child with assessments and keep the approach simple. Not all assessments would highlight the student’s ability to see and interpret pictures on the paper. It challenged the team to create a whole child approach and find assessments that would help get the best and most accurate results. My job on the team was the point out that accessibility/presentation of materials is important and will impact the validity of the evaluation.

Compare and contrast the roles of parents and professionals in interpreting a child’s behavior. How can these perspectives complement one another?

In an evaluation with a 3-year-old, there were different interpretations of the student’s current level and skills. Her mother felt like there were concerns about visual functioning, but felt very alone. My job was to encourage her mother to let her know of all the resources available and she was not alone. The parent has a very important perspective that must be respected and heard and it’s important to have a whole team approach. The PT, OT, Speech, APE, and anyone else at the evaluation on the school team all come from different perspectives. We all see a moment in time and complete our assessment, but the parent puts all of the pieces together. It’s important to know daily routines, likes/dislikes, needs and/or concerns of the parents, and any important medical history etc. The only way a really good evaluation is the professional evaluation team listen to each other and not think that one is more important than the other. Everyone needs to be reminded that the whole child needs to be evaluated with a strength based approach and this does not always happen.

PACES-BVI: Cortical/Cerebral Visual Impairment

Think of a student with CVI you’ve supported. How did sensory complexity, attention, or the environment impact their ability to access instruction? What helped or hindered their visual attention? What strategies made a difference?

I worked with a student who had additional disabilities and limited verbal communication to demonstrate understanding of academic work. He was in a wheel chair with para support at school and able to interpret pictures of familiar items. However, with increased sensory input in the environment (noise, visual clutter etc.), he would look around and not visually focus on the content. In order to help this student, supports included use of a light box, materials put on a black background, tasks that were familiar and known to the student before evaluating knowledge, and a use of 3-D material with increased contrast in the classroom. He will be going to kindergarten this upcoming school year and accessibility of worksheets will be a challenge for this student.

To what extent do existing professional preparation programs (across fields) equip practitioners to understand and serve students with CVI?

I do not think that programs prepare teacher to work with students that have brain based visual conditions (CVI) and it’s hard to convince teachers/administrators in the classroom to try a different, less complex approach to education. You do learn about it, but not enough to know how to work with students on a practical level. Most of the learning is completed on the job, but this is the way in most professions.

PaTTON: Examples of Different CVI Terminology

Consider how has the use of different terms to describe CVI (e.g., CVI, cerebral visual impairment, neurological visual impairment) may affect collaboration with other professionals. Has inconsistent language ever caused confusion or misalignment? What helped clarify communication across teams or settings? How do you navigate terminology in your own practice?

I have not had a lot of confusion with the different terms when working with other professionals. I usually use the acronym CVI and then spell it out (cerebral visual impairment). I find that it’s important to explain the who, what, why and how of CVI to professionals and not assume that they understand. In my own practice, I put in in terms that are clear and concise that apply to the classroom. It’s important to teach and model specific steps that can be taken to support students with CVI. When it seems like more a partnership between TVI and classroom teacher / support team, it is a lot easier to find success with appropriate student support.

What are the key similarities and differences among the three sets of terminology (Visual Behaviors, Characteristics, and Manifestations) used to describe CVI, and how might these differences impact a team’s understanding of CVI and its impact on a student?

The CVI Visual behaviors describe specific categories of behavior that are impacted by an increased difficulty in interpreting the environment. They are not specific, but different overall things that might be more difficult. For example, overall impact of clutter/crowing/spacing and accessibility of worksheet/forms may be more difficult. With CVI characteristics, it’s more specific and gives you something to look for (ex. How much do they need light, how they interpret items etc. near and distance, and any favorite color etc.). Manifestations of CVI highlights how each of the CVI behaviors are impacted in a non-controlled environment or complex/non-complex environment. There could be difficulty imitating and copying off of the board, seeing visual details with clarity, or responding/understanding new or novel tasks and/or assignments etc. I think that they all work together and function at different levels. It might be helpful to first understand the overarching CVI visual behaviors then go into more specifics about what to look for and focus on in the classroom.

I have found that the more learning and PD I can give to teachers and administrators in the beginning of the year is really important. IF I don’t, the rest of the school year is a lot more difficult

I find that youtube as a lot of great videos to share with others as well as CVI Scotland website. When given practical examples about why it’s important, there is more willingness to work with the TVI to adjust not only the classroom but teaching style/method. The funny thing is that using a multi-sensory, more simplified approach helps all students in the classroom. Sometimes they need more than my voice for the proof that changes are necessary and helpful

Congratulations on completing your first year teaching! I’m glad you are in the field. I’ve worked with the same related service providers for years, and we have developed a good professional respect for each other. We value what each other does and work as a team. Each year, usually each semester, I ask them if I may join them during a session with our shared students so that I can learn techniques that they would like for me to carry over into the time I’m with the student. In return, I can share techniques and vision-related accommodation suggestions specific to what they are working on with the student. I go into this wanting to learn from them and not just telling them what to do. We all learn from each other.

In my case, there is more change with teachers than with the related service providers. Each time I’m working with a different teacher, I try to determine if the teacher wants all the information, or if I should highlight the pertinent information. Some teachers want all the articles, reports, and trainings that I can share with them. Others are wanting the need-to-know information. I try to figure out which one is which. When one of my students with CVI has a new teacher (new to having a student with CVI, not necessarily a new teacher), I schedule a time to share information about CVI, the student’s vision, vision-related accommodations, and how the teacher can provide the accommodations (reduce visual complexity, etc.).

I check in with the related service providers and teachers on a regular basis and ask them to let me know if there is a specific activity they plan to do with the student and would like to get with me about ways to make it visually appropriate for the student. I also ask them to let me know if there is a specific technique they are working on with the student they would like me to utilize and encourage as well. We work as a team.

I’ve worked with a student who had CVI whose attention was greatly impacted by lighting in their environment. In order for her to effectively use her vision at first, we had to darken the room and use a lightbox to direct her attention to the visual stimuli. We implemented a routine of several short sessions during her school day like this and worked to get her used to doing visual tasks with more classroom lighting. She is now able to use her vision to look at images on the iPad in normal classroom lighting. The back-lighting of the iPad or a lightbox is still needed to attract her attention, but she doesn’t need the environment to be dark any longer. The sensory environment around the student in the classroom is something I look at when teachers ask what will help the student focus in a particular activity. We acknowledged that sometimes we cannot always adapt the environment, but we could try to find ways to help the student cope such as wearing noise cancelling headphones in the cafeteria to help with the loudness.

I’ve noticed that the environment has a big impact on the response time of my student’s ability to visually process and respond to the stimuli presented. I make it a point to express to all of the student’s service providers that wait time is essential and the more routine something is the more likely the wait time will be shorter. I also found that knowing the student’s bioimetric state was important in deciding what activities to focus on that session. If her muscles were tighter than usual then I would adapt the switch placement to offset the tightness of her muscles.

I find that the hardest part can be minimizing the distractions in the environment, but have gotten better at seeing what can be controlled and doing my best to minimize those distractions especially in the classrooms.

I often try to do some collaborative sessions with the other service providers. I have had some great sessions when the OT and I worked together with a student as she positioned the switch and the student’s arm in the most optimal way and I put the visual stimuli in the correct range for the student’s vision needs. I also enjoy working with the SLP as my students often have communication needs that between the two of us we can develop the most useful system and then show the rest of the team how to use it. I try to make things as simple as possible for the team and am going to try to meet with them more often even if it is only via email to see how we can work together to be more effective than everyone just focusing on their own areas.

  1. Compare and contrast the roles of parents and professionals in interpreting a child’s behavior. How can these perspectives complement one another?

Dr. Luek’s blog gave great insights into the roles of parents and professionals in understanding a child with a visual impairment. Parents know their child the best and their perspectives offer insights that we as professionals cannot always see. Parents see their child interacting in environments over time that we do not get to observe in one visit. Parents are able to observe growth and change over time that professionals are not privy to. Parents are also very emotionally in tune with their child and the subtle signals that indicate a child’s response to stimuli.

Professionals are able to provide the information that help a parent to understand their child’s development better in conjunction with understanding how the vision impairment affects that development. As a parent advisor for MOSPIN and the Missouri school for the Blind, it’s my job to help parents learn techniques and strategies to enhance their child’s learning. I also listen to the parents’ concerns and observations to help them understand that their child’s behavior is not necessarily a sign of a cognitive impairment and help them to understand that it is a vision-related behavior. It often reassures parents that their child’s behaviors and struggles are not necessarily an indicator of another disability when a professional is able to explain or point out different interpretations for what the parents are seeing.

This collaboration between parent and professional is key to understanding a child with a vision impairment. It helps us to understand the child’s behavior and develop better communication and support for the child.

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It is heart warming to know that in collaboration with other professionals , you were able to understand Ella’s needs and provide what was needed to help her to be successful in her school environment. Having the resources to provide Ella with instructional needs was key to addressing her needs and contributed to her successful growth. So often I am struck by the differences in educational settings and if we lived in a perfect world, all children would get what they needed to help make them successful learners. You have done a great job working collaboratively with family and other professionals to provide for Ella.

You are so right in pointing out that we need parents to realize and trust what they have learned about their children and to communicate this to professionals. It does take time for parents to trust us and learn to be open to us about their observations. They often don’t realize that what they have observed is so critical to our understanding of a child’s functioning and development. This understanding helps us to develop and modify our instructional lessons and environment to meet a child’s needs.